Patient Advocacy: A Patient’s Perspective — Trisha Torrey

An incorrect diagnosis of a rare form of cancer led to a new career as a patient advocate for Trisha Torrey.

Polio: A Patient’s Perspective — Karen Chase

As a young girl, Karen Chase overcame the ravages of polio and later drew upon the experience to draft a riveting memoir.

Beating the Odds with CVID

A diagnosis of primary immunodeficiency (PI) often leads to varying degrees of disability. For Brandon Dillon, it offered an opportunity to find untapped reserves of resilience.

Infusing Hope: Living with Hemophilia

Advances in treatment of this long-misunderstood disease allow patients like Daniel Kraus to lead normal, active lives.

Measles: A Patient’s Perspective — Ariel Loop

This California family thought a trip to Disneyland would be the perfect way to celebrate their new baby. Unfortunately, the Loops came home with much more than the happy memories they had hoped for.

Sleep Disorders: A Patient’s Perspective

Narcolepsy is often misdiagnosed and frequently misunderstood. Most individuals experience symptoms for an average of three to five years before receiving an accurate diagnosis, although 10- to 15-year delays are not uncommon.

PTSD: A Patient’s Perspective — Delon Beckett

According to the National Institutes of Health, approximately 7.7 million American adults age 18 and older suffer symptoms of post-traumatic stress disorder (PTSD). Thankfully, emerging treatments are providing relief and recovery, even in the most severe cases.

Stroke Prevention: A Patient’s Perspective — Eric Jordan

At age 41, Eric Jordan suffered a massive ischemic stroke and lost his ability to speak.

Learning to Live with COPD

When Alice Dunkley was diagnosed with inherited chronic obstructive pulmonary disease (COPD), she was given less than five years to live. Twenty-six years later, this active grandmother continues to beat the odds.

Fibromyalgia: A Patient’s Perspective — Linda Thornrose

Diagnosed in 2004 with fibromyalgia, Linda Thornrose is always in pain and deals with chronic insomnia. What she wishes most is that people would understand that this is a real disease and offer some kindness.